Research

I've been getting better at talking about the caregiving a little more lately. Not always honestly, I do use the word "fine" quite a bit.. but better than before. 

One afternoon in January we had one of the girls doing research at UPenn come to talk to my mom and  I about our life. We spent hours chatting, telling stories, and sometimes holding back tears. In the end she fixed it up to these five minutes to be entered into a Neuro film festival. It's important to get this information out there. Prevention is possible for some, and a cure is out there for the rest of us. Spread the word!